Summary of HR 3916: My Body, My Data Act of 2025

Overview

The My Body, My Data Act of 2025 (HR 3916) is a legislative proposal introduced in the House of Representatives on June 11, 2025. The bill aims to enhance the privacy and protection of personal health data, particularly in the context of reproductive health and related services.

Purpose and Intent

The primary intent of the My Body, My Data Act is to ensure that individuals have greater control over their personal health information, especially data related to reproductive health. This legislation seeks to establish clear guidelines for how health data can be collected, used, and shared, thereby safeguarding individuals' rights to privacy.

Key Provisions

While the specific text of the bill is not provided, the following key provisions are anticipated based on the bill's title and intent:

• Data Privacy Protections: Establishes stringent requirements for the collection and handling of personal health data, particularly data related to reproductive health.
• Informed Consent: Mandates that individuals must provide explicit consent before their health data can be shared or used for purposes beyond their immediate healthcare needs.
• Data Access and Control: Empowers individuals with the right to access their health data and request corrections to any inaccuracies.
• Restrictions on Data Sharing: Limits the circumstances under which health data can be shared with third parties, including employers and insurers, without the individual's consent.
• Penalties for Violations: Introduces penalties for entities that fail to comply with the established data privacy standards.

Affected Parties

The My Body, My Data Act would impact a wide range of stakeholders, including:

• Individuals: Enhances the rights of individuals regarding their personal health information.
• Healthcare Providers: Requires healthcare providers to implement new protocols for data handling and patient consent.
• Health Technology Companies: Imposes regulations on companies that collect and manage health data, ensuring compliance with privacy standards.
• Insurers: Affects how insurance companies can access and utilize health data for underwriting and claims processing.

Legislative Process

• Introduced: June 11, 2025
• Current Status: The bill has been referred to the House Committee on Energy and Commerce for further consideration.
• Companion Bill: There is a related bill, S 2029, which serves as a companion in the Senate, indicating bipartisan interest in the legislation.

Conclusion

The My Body, My Data Act of 2025 represents a significant step towards enhancing data privacy protections in the realm of personal health information. By establishing clear guidelines and empowering individuals, the bill aims to foster a more secure and respectful handling of sensitive health data, particularly in relation to reproductive health. As the bill progresses through the legislative process, it will be crucial to monitor its developments and potential implications for privacy rights in healthcare.